People will always judge by appearances |
LOVING parents, | |
Minette Marrin | | peculiar is often harsh. | | to her eyes, or pin back |
if they can | | | Other children can be sur- | | her ears, but anyone |
afford it, buy | | | prisingly cruel. My little | | looking at her must be |
their daughters | | | sister’s birthday parties, | | [id:9220] her new pretti- |
pretty clothes and get | | | [id:9219], were full of tiny | | ness, and her confidence, |
their teeth fixed. They | | | girls in pretty party | | while still unmistakably a |
take them to doctors for | | | dresses, who before long | | Down’s person. If there is |
acne and to surgeons for | | | would start taunting my | | one thing I have become |
birthmarks or squints, and | | | sister for her oddities, and | | convinced of, it is that it |
for cleft palates, club feet | | | end up leaving her in | | is essential to think prag- |
or curved spines. If a boy | | | tears. If there had been | | matically, and always |
messes up his face in a | | | any kind of scientific | | about the [id:9221]. Phi- |
motorcycle accident, | | | magic to change all that, | | losophical principles |
parents try to arrange | | | or even to make it only | | about the meaning of han- |
cosmetic surgery. The | | There seems to be a | | slightly better, of course I | | dicap in general are irre- |
[id:9215] of such repairs to | | widely held view that | | would have been in | | levant to the question of |
a child’s well-being is | | there is something wrong | | favour of it. | | what was best for this |
often very obvious. And | | with [id:9217] the disabili- | |
After the
surgery she is
pretty, but still
unmistakably a
Down's person
| | little girl. Her photographs |
loving parents who are so | | ty that is Down’s syn- | | | show that her appearance |
protective of one of their | | drome. At its extreme this | | | is now enormously |
children would not be any | | view holds that it is de- | | | more attractive |
less protective of another. | | meaning to people with | | | and acceptable. |
My sister and I both | | Down’s to suggest that | | | A young Down’s syn- |
damaged our front teeth | | their condition is in itself | | | drome man said on the |
in minor accidents when | | undesirable. To suggest | | | same documentary last |
we were children. It | | that it should be eradi- | | | week: “I wish people |
would have been unthink- | | cated, or at least modi- | | | wouldn’t judge by ap- |
able in our family that my | | fied, is to devalue them as | | | pearances.” But they do |
teeth should have been | | individuals. Therefore it | | In the case of the | | and they always will, for |
capped but not hers, just | | is [id:9218]. Society, not | | three-year-old girl, there | | deep-seated reasons, and |
because she was [id:9216] | | the individual, should | | is surgery that can subtly | | not always bad ones. |
and I was supposedly | | change. | | alter her appearance, re- | | [id:9222] appearances work |
normal. Yet this idea | | I sympathise with this | | lieve some physical diffi- | | both ways. The ap- |
seems to lie behind the | | feeling, but it is undisci- | | culties and make her look | | pearance of Down’s is, to |
arguments last week, | | plined sentimentality. The | | less odd. Her oversized | | anyone capable of kind- |
widely reported in the | | truth is, however much | | tongue has been reduced. | | ness, a sign to be gentle: |
media, about a three- | | we may love an | | She will now find eating | | stigmata have their |
year-old girl with Down’s | | individual sufferer, that | | and speaking easier. Her | | gentler uses. Curiously |
syndrome, whose parents | | Down’s syndrome is | | malformed teeth and bite | | enough, one of my |
had arranged cosmetic | | undesirable. So is spina | | can be made to look | | sister’s problems was that |
surgery for her, and | | bifida or Huntington’s | | better and to work better. | | her quite normal ap- |
whose case was the sub- | | chorea. Which of us | | Who could deny such im- | | pearance worked against |
ject of a television docu- | | would not wave a wand, | | provements to any child? | | her: there weren’t any |
mentary. Many people | | if we could, and magic it | | I don’t think it was so | | disarming signs in her ap- |
expressed shock and dis- | | away? For one thing the | | obviously desirable to | | pearance. |
approval. | | life of a child who is | | make subtle adjustments | | |
| | | | | | 'The Sunday Telegraph' |